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home >> charity search >> batten disease family association cio
Finance Score: 0
Governance Score: 0
Support Score: 0
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    • No supporters identified
    Overall GiG Score: 0 ?

    BATTEN DISEASE FAMILY ASSOCIATION CIO

    A supportive, informative, national networking organisation for the families, carers and professionals giving care to children and adults with Batten Disease and for promoting awareness of, and research into, the disease
    Find similar charities within: miles

    Financial Data ?

    This charity has not yet lodged any accounts with the Charities Commission.
    Established: less than 1 year

    www.bdfa-uk.org.uk

    admin@bdfa-uk.org.uk

    07354486586

    Charity Commission for England and Wales
    UN SDGs
    ?
    Listed activities
    • Disability
    • Education/Training
    • The Advancement Of Health Or Saving Of Lives
    GiG Classification
    • Secondary schools
    How it operates
    • Provides advocacy/advice/information
    • Provides services
    • Sponsors or undertakes research
    Where it operates
    • Northern Ireland, Scotland, Throughout England And Wales,
    Who it helps
    • Children/Young People
    • People With Disabilities

    Who supports them? ?

    We have no records of donations from grant makers.

    How is it governed?

    Trustees (4)
    Current Trustees appointed

    • DR ZLATKO SISIC (Chair) Appointed: 2023
    • MARK ALEXANDER THOMPSON Appointed: 2023
    • ROBERT JAMES PETER THOMPSON Appointed: 2023
    • SIMON DAVID SEWART Appointed: 2023
    Legal constitution
    • Charity registered in England & Wales on 09/11/2023, number: 1205650
    Gift Aid
    • NOT registered with HMRC for Gift Aid
    Policies in force
    • Bullying and harassment policy and procedures
    • Complaints handling
    • Complaints policy and procedures
    • Conflicting interests
    • Financial reserves policy and procedures
    • Internal charity financial controls policy and procedures
    • Internal risk management policy and procedures
    • Investing charity funds policy and procedures
    • Investment
    • Paying staff
    • Risk management
    • Safeguarding policy and procedures
    • Safeguarding vulnerable beneficiaries
    • Serious incident reporting policy and procedures
    • Social media policy and procedures
    • Trustee conflicts of interest policy and procedures
    • Trustee expenses policy and procedures
    • Volunteer management
    Main office

    10 Nidderdale Walk
    Baildon
    SHIPLEY
    West Yorkshire
    BD17 6TW

    Objectives

    THE OBJECTS OF THE CIO ARE:TO PRESERVE AND PROTECT THE HEALTH AND WELLBEING OF PERSONS AFFECTED BY ALL TYPES OF NEURONAL CERIOD LIPOFUSCINOSIS (NCL) COMMONLY KNOWN AS BATTEN DISEASE.TO ADVANCE THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC ON THE SUBJECT OF BATTEN DISEASE AND ITS IMPLICATIONS FOR THE FAMILY, IN PARTICULAR BUT NOT EXCLUSIVELY BY SUPPORTING AND CONDUCTING RESEARCH INTO THE MANAGEMENT OF BATTEN DISEASE AND TO PUBLISH THE USEFUL RESULTS THEREOF AND TO SUPPORT ORGANISATIONS PROMOTING RESEARCH INTO BATTEN DISEASE.

    Data Sources

    Charity Commission for England and Wales

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